Archive | December, 2013

Happy New Year!

29 Dec

To my subscribers:

As the year 2013 draws to a close, I want to wish you all a Happy New Year! Thank you for your “likes” and comments over the past year. I seem to be writing less and taking more photos recently, so I have started a new photography blog that focuses on my profession, piano technology and related musical interests. If you have any interest in music, you might find it interesting. You can also follow it if you want notifications of new posts. I promise not to flood your inbox with new posts several times a day! The new blog address is:


Photo of Banjogrrl by Professorgrrl

I will still write occasionally for this blog, if something interesting and related to XLH inspires me, but right now, my time seems to be filled up with more work and less time to write. (Writing is hard work, I’ve discovered, and I only have the time and energy for one job!) My original intent when I started this XLH-related blog was to write specifically for the XLH audience, on issues of aging, health, disability, etc. As a result, I have connected with several “XLH-ers” and that has been invaluable to me. When I started, I was experiencing some physical changes related to XLH, and it has been very helpful to write about it. I’m sure there are more changes ahead of me, but for now I’m in a kind of holding pattern with nothing major on the horizon, except for possibly being able to participate in a drug study in the future.

Blessings to you in 2014!

© Banjogrrldiaries